Text size

Bulgaria marks international Rare Disease Day

published on 2/28/25 6:15 AM

Photo: BTA, archive

At the initiative of the European Union of Patient Organizations for the Fight against Rare Diseases, on the last day of February, we focus on people living with a rare disease. Awareness campaigns are organized to raise public awareness of this issue.

March marking the World Day of Rare Diseases takes place in Sofia

In Bulgaria, nearly 370,000 people live with rare diseases.

Due to the lack of a national strategy and plan for rare diseases, Bulgarian patients are deprived of equal access to 19 of the 24 areas of healthcare for which the EU provides high-quality expert care, the National Alliance "Rare Diseases - Bulgaria" warns.

The organization calls on the authorities in our country, in addition to the traditional balloon release and demonstration of empathy for people with rare diseases, to take energetic and consistent actions to make the daily lives of these patients full and dignified.

Последвайте ни и в Google News Showcase, за да научите най-важното от деня!

Radio Bulgaria News rare disease rare diseases

More from category

Made in Bulgaria – Union of Small and Medium Enterprises presents its annual awards

The association "Made in Bulgaria – Union of Small and Medium Enterprises" will hold its 31st Golden Martenitsa Award Ceremony this evening at 6:00 pm. President Rumen Radev is also expected to attend the event. The "Golden Martenitsa" award was..

published on 2/27/25 6:10 AM

Cloudy and foggy weather expected on Thursday, temperatures in wide limits

On Thursday, minimum temperatures in Bulgaria will be in wide limits, from minus 6° - minus 8°C in places with fog, to about 5°C in the extreme southwestern regions of the country. In Sofia, it will be about minus 1°C. During the day,..

published on 2/26/25 7:15 PM

Bulgaria will try to save part of the second payment under the Recovery and Resilience Plan

Our country has a six-month deadline until the end of August 2025 to restart the process of adopting the laws related to the Recovery and Resilience Plan. This will be done in an attempt to save most of the second payment under the plan,..

published on 2/26/25 6:32 PM