In support of people with rare diseases, balloons in different colors flew over Sofia at noon, BTA reported. The balloons were released in the courtyard of the Alexandrovska Hospital, where medical specialists, patients and their relatives gathered..
At the initiative of the European Union of Patient Organizations for the Fight against Rare Diseases, on the last day of February, we focus on people living with a rare disease. Awareness campaigns are organized to raise public awareness of this issue...
Relatives of patients suffering from rare diseases organized a march in Sofia on the occasion of the World Day of Rare Diseases. They call on the state to develop a National Plan for people with rare diseases. The march was attended by relatives and..
5% or around 400,000 people in Bulgaria suffer from rare diseases, with approximately 75% being genetic. Due to missing registries, however, it is difficult to establish the actual number of patients with such diagnoses, reported BNR Plovdiv. In..
Share Your Colours! This is the motto of International Rare Disease Day, marked once every four years - and there is a reason why this is so. Because the people with rare diseases remain invisible for a long time – undiagnosed, shut out of the world,..
For the second year running, marches in support of people with rare diseases were held in Sofia, Varna and Pleven. The initiative is held on the occasion of the World Rare Disease Day. It is organized by members of the Rare Diseases and..
People with disabilities are to protest in front of the Ministry of Health today. They are calling for access to medical treatment, as well as for objective and rapid medical opinion and assessment of disabilities taking into consideration all..
In an online discussion, young people from Pazardzhik called on MPs to initiate legislative changes for the treatment of Bulgarians with rare diseases who have already turned 18. The reason for their request is their classmate who suffers from cystic..
