Text size

Bulgaria marks international Rare Disease Day

published on 2/28/25 6:15 AM

Photo: BTA, archive

At the initiative of the European Union of Patient Organizations for the Fight against Rare Diseases, on the last day of February, we focus on people living with a rare disease. Awareness campaigns are organized to raise public awareness of this issue.

March marking the World Day of Rare Diseases takes place in Sofia

In Bulgaria, nearly 370,000 people live with rare diseases.

Due to the lack of a national strategy and plan for rare diseases, Bulgarian patients are deprived of equal access to 19 of the 24 areas of healthcare for which the EU provides high-quality expert care, the National Alliance "Rare Diseases - Bulgaria" warns.

The organization calls on the authorities in our country, in addition to the traditional balloon release and demonstration of empathy for people with rare diseases, to take energetic and consistent actions to make the daily lives of these patients full and dignified.

Последвайте ни и в Google News Showcase, за да научите най-важното от деня!

Radio Bulgaria News rare disease rare diseases

More from category

Mortgage loans grew by nearly 30% for a year

Faster growth in loans compared to deposits, with mortgage loans remaining the main driver, the latest data from the Bulgarian National Bank show. In July 2025, loans to households and non-profit institutions serving households..

published on 8/25/25 3:27 PM

President expects proposals for ambassadors in key capitals

The trend of temporary managers of Bulgaria's embassies around the world should not become the norm. This is what President Rumen Radev said to the government through media in the National Archaeological Institute with Museum at the..

published on 8/25/25 3:02 PM

Bulgaria becomes more accessible destination with the introduction of the euro

One of the sectors with most benefits from the adoption of the euro in this country will be tourism, Deputy Minister of Tourism Irena Georgieva has told the Bulgarian National Radio. “Bulgaria is becoming a more accessible destination..

published on 8/25/25 1:19 PM